My life is never going to be “normal.” I’ve known this for a while. Writing that statement isn’t hard, but accepting everything implicated in it is a lot more complicated. I never really wanted a “normal” life (whatever that even means). I grew up in an alternative, intentional, heart-following family, and always imagined myself following … Continue reading Acceptance (Part 1)
(Some Thoughts on Supporting Loved Ones Through Hard Things) When I was diagnosed with chronic illness at 22, I soon realized that most people had no idea what to do with the fact that I was sick. People wanted to help, people wanted to show up for me, people cared, but most of them didn’t … Continue reading What Chronic Illness has Taught Me About Showing Up
My ongoing journey with chronic illness has been particularly painful and difficult lately. It has become clear that I'm not able to work even a part time job at this point in time, I don't not know when or if that will ever change, which is very upsetting. Besides short daily walks, I rarely make … Continue reading September Feels Like
I’ve been diagnosed with fibromyalgia and chronic fatigue for almost a year and a half. I deal with widespread chronic pain, perpetual exhaustion, executive dysfunction, and a handful of other delightful symptoms. I have good days where I can function reasonably well and present as able-bodied and healthy, and I have bad days where I … Continue reading How to Support Your Sick and Disabled Friends Beyond Prayers for Healing: An Open Letter to My Christian Friends.
Learning how to cope with chronic illness has been filled with challenges. Since my fibromyalgia and chronic fatigue diagnoses are only a few months old, I'm still in the beginning stages of figuring out how my body works, how to live within my new limitations, and how to manage and improve my pain and fatigue … Continue reading Pain and Isolation